So, a few days ago I took my son to the dentist to get his teeth checked out. He’d gone a year ago to get his teeth worked on and had to have a baby root canal which is called a pulpotomy. Needless to say, the whole thing was a disaster. So, I’m asking for some help to pay for his dental work. We’re asking help for the $3000 dollars we need to get all of his work done plus some just in case they have to put a spacer and retainer in his mouth. (There is a risk of infection under two of his teeth) http://www.gofundme.com/mannysteeth
My son Manny, has Aspergers Syndrome. This is an autism spectrum disorder and differs enough from Autism to be separated in the DSM.
When he was diagnosed 4 years ago, I cried and didn’t want it to be true. Since then I’ve come to terms that my son is just a little bit different and sometimes comes off as a little bit peculiar to strangers. Some people think Autism and expect a “Rain Man” or a “Mercury Rising” kid. This is not the case, and every case is different and have varying degrees of what each person has difficulty with. This is why it is called a spectrum. Every day my son surprises me with the amount of things he knows. When he was a baby his favorite thing was trains. He would line everything up and move them like a train. He had ABC blocks that most kids would stack them and knock them over, but he lined them up and flipped the blocks over to one side either red, yellow, blue or green and line them up by color, then he proceeded to move them like a train. If this practice was disrupted he would get very angry.
When he was 18 months old, he stopped talking. At first I thought it was just a phase and as months passed he refused to speak and I got worried. So at his 2 year check up I mentioned this to the doctor, and she was worried too and said that we’d keep an eye on it and address it if it didn’t get any better. He then got some speech therapy from a wonderful SLP by the name of Jenn from Therapy 2000. By the time he was 3 he was speaking again, but very small sentences and mixed in a lot of filler sounds instead of words. He was able to parrot words back but still did not have a good understanding of what the words meant. By this point my doctor was very concerned because linguistically he was behind in his development. So we got him tested. He qualified under Autism to be seen at Our Children’s House in Baylor. He was getting Speech Therapy and they also noted that his muscle tone in his arms was low and that he lacked some of the fine motor skills that children his age were supposed to have, so they added the Occupational Therapy to that. He worked with OCH for about a year at which point he no longer had insurance and we had to discontinue therapy. He had made some incredible progress and strides to becoming more and more functional. The last 3 years he has received speech therapy from school but the OT hasn’t been given. His hands hurt when he tries to write so he avoids it at all costs. He holds his pencil funny and his lack of wanting to write is beginning to affect his school work. I will be requesting another eval at the beginning of the year.
This past year, he had to stop going to music class because the music teacher had little to no control of his class and my son complained a lot that the kids just ran around doing whatever and it really frustrated him. He did not like the noisy atmosphere and his regular teacher noticed that on music days he had a hard time focusing after music and was generally in a bad mood and refused to work after. A lot of times he would hide under his table and refuse to come out during class.
I love my son, and anyone that tries to stand in my way of getting him the help that he needs will be promptly dealt with. I don’t appreciate being second guessed and told that the diagnosis we got was not correct. I’m his mother, he has lived with me his whole life and I have dealt with his moods. I’m tired of people that aren’t at the forefront of all the hell we have been through telling me that maybe nothing is there. My mother at first thought the same thing, until she really paid attention and started to notice some of the things that he does.
Right now his obsession is Mario Brothers and Pokemon. He loves talking about both of them ALL. THE. TIME. it makes me feel that is all that is ever on his mind. Drives me nuts sometimes, but I have to take a breather sometimes and remember that he’s just wired that way.